Monday, March 16, 2009

No Dice

I just came from my hematology appointment, and long story short?: He doesn't think that the mutations are what is causing my infertility. His basic argument was two-fold. Apparently, my homocysteine levels are in perfect range. I had read that these #s can change, however, and that the MTHFR itself is more telling of a problem than the homocysteine levels. The Dr feels the opposite. Second, he said that these two clotting factor mutations that I have are venous, not arterial; meaning, they affect the blood going back to my heart, not coming from my heart to the rest of my body. In other words, if this was a serious condition for me, it could lead to heart attack, stroke, etc., but most likely is not contributing at all to early miscarriages or failed implantation. He did test me for one more clotting factor today, that had not been run initially, and that is the Lupus Anticoagulant... THIS, he says, would surely be a factor in early miscarriages, though he does think I would have had OBVIOUS miscarriages in my past if I had this disorder. But he's not ruling it out.

Bottom line is, if I test positive for the Lupus Anticoagulant, then I'll be treated preconceptually with blood thinners. If not, then I will just continue on the regimen that my NaPro Dr started me on (baby aspirin and increased folic acid).

Not exactly the answers I was looking for today. I guess it's a good thing to hear that a blood professional does NOT think I have been having early miscarriages... but at the same time, I kinda wish there was more hope in the news I did receive today :(

I have to run to CCD. That's all the news for now. That, and our homestudy has not commenced yet due to a "glitch" - - without delving too much into detail, it has to do with DH's past. I am SOOOOOOO upset/annoyed/depressed that we may never have bio children because of ME, and we may never adopt because of HIM. The whole process of TTC AND adoption are soooo screwed up, I hate it!!!!

11 comments:

Lisa and Jamie said...

Ugh! I hate it too. I'm sorry that this isn't the big answer to all your problems. Was one of the tests they did called "cardiolipin antibodies"? My lupus anti. one came back OK, but the one I just said didn't. I'm now wondering if mine are like yours, especially if I'm just supposed to take a baby aspirin..... Is a hematologist covered under ins if you're seeing them for infertility reasons? I still think that this has got to have something to do with your IF. BIG HUGS!!

Sew said...

Oh my gosh!!! Call my doctor! He might have a different spin on it. He might look at it differently. You never know!

I am so sorry about the adoption. I don't even know what to say....I pray it can be fixed. Everything can be fixed right? ????

This_Cross_I_Embrace said...

Will your Dr do a phone consultation with me, N? I really don't want to do that behind my Dr's back, though... seeing as I work for her, and all! But I would like to talk to him.

Lisa, omg! I am so glad you're a blogger! I'll have to go read your blog now. I am not sure about the cardiolipins, but I'll ask him about it. The hematologist was covered, I just had my usual co-pay, because I was seeing him as a hematologist, not as a fertility specialist (which he's not). So, the insurance will never need to know what my "motives" were in seeing him, kwim?? If your ins. needs a referral, though, then you'll need to get that first. But all Drs should be covered regardless of "why" you're seeing them.

I really think this has something to do with my IF, too. But, maybe like many women, all I need is the baby aspirin and folic acid? Ugh, I wish this were easier...

Vent-ilation said...

Hope this glitch works itself out!! (The bio and the adoptive glitches!) This is thinking WAY too far ahead, but worst case scenario, if the glitch is more serious, could you still be able to do private adoption, like through a lawyer and not an agency? It'd probably be expensive, but wouldn't that be another avenue to adoption? We're all determined that you get your baby, darn it!!

JellyBelly said...

i'm sending you prayers! i'm sure that everything will work itself out.

LifeHopes said...

Why don't you just treat it anyway? If it's just folic acid and B6 and baby aspirin, it couldn't hurt to try for a few cycles, right?

P also inquired into all of this with a reputable hematologist at Duke.

She had the exact same opinion as your Dr. However, it is worth noting that this whole thing is NOT based on the studies, it is something "new" that hasn't been proven yet ... so from that perspective, it cannot hurt to try treating it, right?

Praying for you!

This_Cross_I_Embrace said...

He didn't say to stop treatment- - he thinks it's a good idea to be on the folic acid (though he did say 3 mgs was "more than enough" to help keep my homocysteine levels low). And he said being on the baby aspirin was also fine. But I had been told by other women on the catholic IF yah.oo group that treating preconceptually with lovenox yielded the best success rates...? So I was kinda hoping he would give it to me! Imagine, wanting more drugs, injections to boot!

Fight The Good Fight of Faith said...

Sorry to hear about the glitch in the adoption. I hope it all gets resolved!!!

I'm praying for you that you get some more positive results with your treatment.

allyouwhohope said...

Just a thought - Sew's doctor who is studying this is also a Napro doctor, so perhaps your doctor would be more open to you contacting him because of that? And isn't he presenting his findings to Dr. H soon?

I'm assuming one of the reasons he is doing this research is because other doctors haven't discovered a link yet to very early miscarriage, but at the same time that means other doctors are probably pretty skeptical of it. He may be right or wrong, but he is definitely the one to contact.

Sissy said...

I have been thinking about you lately and hoping you are doing ok amidst all this. Yes, adoption is overwhelming enough without TTC at the same time. Praying for you.

the misfit said...

I'm so sorry you've been hit with so many roadblocks all at once. Don't give up - you guys are in my prayers.

You know, in some parts of the world, they just plain sell children...